Monday 27 September 2021

Looks Can Be Deceiving

 



I'm pleased I don't look too rough or ill (according to other people that is). Most days I don't feel that great but I am still managing to put a smile on my face. To be honest it helps to try and appear positive. If I feel miserable, by the time I've had a chat and a laugh with someone I usually feel happier. It's hard to engage with someone when they are always negative and I'd hate for people to avoid me because I'm coming across all doom and gloom.
That's why I write this blog, even though I haven't written one for ages (mostly because I've been trying to put cancer to the back of my mind) 
and this one is going to be brief as I can't concentrate.  At least if I want to moan or be pissed off on here it's not directly affecting anyone and I do get a lot of support from people who read this and that really helps.
I'm grateful I look ok on the outside but what's going on inside isn't good ...it really is shit.
So after two good scans and a good long break from hospitals and appointments, my last scan wasn't what I was hoping for. I now have a tumour in my trachea (windpipe) which if left to it's own devices will eventually suffocate me.
They can't 100% say what it is without a biopsy but my oncologist and surgeon are thinking it's most likely another metastasis from my original bowel cancer. Whatever it is it shouldn't be there and needs to go!
I had an appointment with a really great surgeon from the Norfolk and Norwich hospital. He was quite positive but realistic. So far every bit of cancer that's appeared has been removed by surgery or ablated (I call it getting zapped).
This time he doesn't think surgery would be in my best interests. Removing a tumour from your windpipe is a really complex procedure and carries a lot of risks. He also thinks that because I've already had it spread to my ovaries and lungs there's probably more cancer that's not showing up yet. FFS
I'm going into hospital tomorrow and he's going to do something called a rigid bronchoscopy and laser treatment so hopefully he'll be able to remove most of it and at least it will clear my airway. I'm scared about this procedure. I can't stand the thought of it...glad I'm having a general anaesthetic. Once that's done they'll review and decide what's next. I'm trying to look on the bright side ... something is being done and I'd be in a lot more trouble if the surgeon had turned round and said he couldn't do anything.
Thankfully I have a fantastic network of people supporting me and that is one of the most important things ...even so... 
cancer really is a bastard. 

7 comments:

  1. Thanks for Blog Update ...and Good News that you are getting instant treatment. Often think of you and then I see a lovely crop of photos and think Ahhh Lynn is ok ... and so you will be xxx

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  2. Thankyou Cynthia
    Sorry I haven't been in touch. Hope all is well with you and Busby xx

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  3. Hi Lynn, seems ages since I visited you on Colchester Hospital, I'm so sorry to have now read your blog that yet another tumour has raised its ugly head, you've had more than most and survived it and with love, hope and the good doctors help you'll get over this one too! I'll be thinking and praying for the opening to go well for you, all the best to you, I still owe you a cake and coffee when you're up for it, I've still to show you Murphy! Xxx take good care lynn, all the best wishes to you, kind regards, Denisxxx

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    1. Thankyou Denis ...well it's a year since you smuggled wine into hospital!
      Can't wait to meet Murphy xx

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  4. Hi Lynn, we are so sorry to hear the latest outcome of your the scans and wish you all the best and a positive outcome. I admire your attitude and bravery posting your feelings and thoughts on these pages, this I feel is what keeps you going through the hardest of times in your life and as you say all your friends around you, even like me who has never met you personally but look up to you for your fighting spirit, always thinking of others and of course your photography, we wish you all the best and pray all goes well for you, take care my friend Lynn.

    Love and best wishes Mike.

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  5. Oh no, always just when things were plodding along okay :( well you certainly like to be different! Im glad they are looking after you well, and spotting these things quickly in order to get them dealt with.
    Im so sorry you have to endure such a scary procedure but hopefully it will be over soon and youll recover quickly. My grandad had it there years ago and his procedure went well.I pray yours does too dear lady.
    Its hard to keep going but you do a great job at it and all with a beautiful smile.
    Good luck xxxx

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  6. Thankyou Tania
    Wasn't really a case of keeping it quiet ... was just trying to get on with life while I had a break from it all xx

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